A real-life “Sleeping Beauty,” who sleeps up to 22 hours a day, says her life is anything but a fairytale. Beth Goodier, 20, of England, suffers from Kleine-Levin Syndrome, which can leave her awake for only two hours a day for up to five weeks at a time, according to the Caters News Agency, nypost reports.
“It’s nothing beautiful, it’s nothing romantic, it’s horrible,” she said in a recent BBC report.
The mysterious condition, also known as Sleeping Beauty syndrome, only affects about 40 people in the United Kingdom, mostly boys, and there is no known cure.
KLS begins in adolescence and also causes behavioral changes, including binge eating and dream-like feelings. “I want to be able to do something productive in the time when I’m well… to be productive for society,” Goodier, who began suffering from KLS at age 16, told the BBC.
Goodier, who posts videos of herself on YouTube, depends on her mother, Janine, who quit work to care for her daughter. “When she’s up, all she does really is, she’s either in bed or on the sofa and she’ll watch telly, often the same things over and over again as she likes predictability,” her mom said.
Dr. Guy Leschziner, a London neurologist, said: “It’s a very, very devastating condition in that regard because of its unpredictability. In most individuals, the condition burns out after a number of years and on average it goes on for about 13 years.” Source; nypost.
“It’s nothing beautiful, it’s nothing romantic, it’s horrible,” she said in a recent BBC report.
The mysterious condition, also known as Sleeping Beauty syndrome, only affects about 40 people in the United Kingdom, mostly boys, and there is no known cure.
KLS begins in adolescence and also causes behavioral changes, including binge eating and dream-like feelings. “I want to be able to do something productive in the time when I’m well… to be productive for society,” Goodier, who began suffering from KLS at age 16, told the BBC.
Goodier, who posts videos of herself on YouTube, depends on her mother, Janine, who quit work to care for her daughter. “When she’s up, all she does really is, she’s either in bed or on the sofa and she’ll watch telly, often the same things over and over again as she likes predictability,” her mom said.
Dr. Guy Leschziner, a London neurologist, said: “It’s a very, very devastating condition in that regard because of its unpredictability. In most individuals, the condition burns out after a number of years and on average it goes on for about 13 years.” Source; nypost.
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